This photo, of my children Kerrie Ann, then five, and Robin, three, is one I’ll treasure forever. I have mixed emotions. It takes me back to a happier time, but it also reminds me of the struggles ahead.
Both Kerrie Ann and Robin were diagnosed with Huntington’s disease at 19 and 30, and our upside .
Their dad, Ray, carried the gene that can cause it. He’d been tested after his mum had died from it. When I was first pregnant in 1978, we knew there was a 50% chance of Ray passing it on, but I just didn’t think it would impact us.
Shock discovery
In May , Ann was , Robin in 1981. Ray and I parted ways in 1983, and when Robin was 12, he was diagnosed…